NZORD is running a free Education Session for the chance to meet, talk and share with others living with rare disorders. This will be a morning meeting in Wellington with two speakers and a workshop dedicated to addressing some of the challenges faced by those with rare disorders to help in creating a vision for navigating your own complex health journey. The workshop will also offer skills of resilience and being your own advocate warrior for yourself or your loved one.

Date and location

Tuesday 26 February 2019

10am – 12.45pm

Life Centre, 21 Hania Street, Wellington


9.45 – registration

10.00 – NZORD overview – how to connect with other support groups

10.10 – First speaker (Caroline De Luca from PHARMAC)

10.30 – Questions

10.40 – Second speaker (Laurie Hilsgen - Carer’s Alliance)

11.00 – Questions

11.10 – Morning tea

11.20 – Workshop sessions: Your vision for living your life/Being your own advocate warrior for your health (facilitated by life coach Tracey Hancock and NZORD staff)

12.20 – Group debrief: An opportunity to share and discuss challenges, learnings and successes

12.45 – Sessions ends

Speakers’ Bios

Tracey HancockTracey Hancock

Tracey Hancock, coach and mentor, guides people to realise the strength within themselves and helps people reclaim their power. She knows we can’t always control what happens in life and sometimes we’re presented with extraordinarily challenging situations. But it’s important to remember the depth of courage and wealth of skills, experiences and strengths that we each have because they are invaluable in any situation. Tracey combines mindset coaching, her own life and business experience, and a journey with Hodgkin Lymphoma to help others take charge of their life. For more information about Tracey and what she does, visit

Caroline De Luca

Caroline De Luca

Caroline is a Senior Therapeutic Group Manager/Team Leader at PHARMAC, managing medicine funding applications for a range of portfolios, including immunosuppressants, biologics, metabolic and rare disorders. Caroline is a registered Pharmacist, with 10 years experience working in hospital pharmacy in paediatric medical specialities in Auckland, before moving to Wellington to join PHARMAC in 2013.

Laurie Hilsgen

Laurie HilsgenLaurie Hilsgen is Carers NZ’s chief executive and acts as the Secretariat for the NZ Carers Alliance of 45 national not for profits. She will provide an update about the current work of the Alliance and progress with key policy issues such as paid family care and respite.