Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.

Jun 6, 2018, 11:44 AM
Adam's story

It is very scary and at times difficult trying to navigate the system.

May 10, 2018, 12:01 PM
Allyson's story

I want things to be so much better than they were when I was diagnosed.

May 3, 2018, 12:11 PM
Jessica's story

I wasn’t disappointed, I was lost and had no idea what all this meant.

May 3, 2018, 12:04 PM
Doug's story

I grew up a normal kid so it is very frustrating for me now.

May 1, 2018, 5:03 PM
Heath's story

From four weeks old we begged for help with Heath.

Apr 19, 2018, 12:15 PM
William's story

William is my superhero - 11p14.3 or not he’s a true blessing.

Feb 28, 2018, 12:17 PM
Gabrielle's story

Almost every day Gabrielle amazes us with what she can do.