Rare Disease Day 2020
- 02:00 PM - 04:00 PM
This Rare Disease Day, Rare Disorders NZ is launching the Fair for Rare NZ campaign at the Grand Hall, Parliament Buildings in Wellington. This event is hosted by Dr Liz Craig MP.
There are over 6,000 rare disorders which collectively affect 300,000 New Zealanders. Rare Disorders NZ, and the support groups we represent, are calling for acknowledgement of the common challenges faced by people living with a rare disease, along with a commitment to address these challenges through the development of a New Zealand National Rare Disorder Framework.
This event is part of Rare Disease Day 2020 and is also an opportunity to celebrate Rare Disorder NZ’s 20th birthday.