Briefing to Incoming Minister
Rare Disorders NZ has sent a Briefing to new Minister of Health Andrew Little on behalf of the rare disorder community.
The Briefing details the issues and opportunities to improve healthcare and wellbeing for the 300,000 New Zealanders living with a rare disorder and their whanau. It outlines the need, supported by our collective, for a National Rare Disorder Framework, in line with other OECD countries such as the UK, Australia and the US.
Rare Disorders NZ BIM 2020