National commits to ring-fenced fund
Our CE Lisa Foster and Nicola Swan from SWAN NZ attended the launch of National's Health Discussion document last week.
National commits to establishing a ring-fenced $20 million rare disorders fund over four years as well as reviewing criteria and formula of assessment to ensure people with rare disorders aren't overlooked (page 20).
"This is a step in the right direction and we're pleased that the rare disorder community is acknowledged in this wide-ranging document. National states they want to encourage Kiwis to live well so we will continue to push for rare disorders to be included as a key health challenge, with a clear plan to ensure equitable healthcare," says Lisa.