We have signed a new three-year contract with the Ministry of Health, with reduced funding each year.
NZORD will receive full funding of $120,000 for 2018/2019, with reduced funding over the following two years: $90,000 for 2019/2020; $60,000 for 2020/2021. You can view our financial records in our Annual Reports.
This reduced funding contract was the only option we were given by the Ministry of Health. Timelines were too short to enable further negotiation, so the NZORD board chose to accept this contract in order to continue our existing important services to the rare disorder community.
We are disappointed with the reducing nature of this funding because by year three the Ministry’s contribution will reduce to just 15 cents per rare disorder patient in New Zealand.
The NZORD team, together with our board, will be reviewing our long-term strategy at our AGM in September. This will be an opportunity to assess the services we provide and focus on those that provide the most value to rare disorder patients and their families, in order to be able to live within our means.
We will also be looking for other sources of funding to make up the shortfall from the Ministry of Health.
Thank you to all the support groups, partner organisations and patients for your ongoing support.
Dr Collette Bromhead