Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.

Lisa spoke about the need for a National Rare Disorder Framework, as well as the challenges facing people living with a rare disease and their families.

“This media attention means that policy makers and the general public will be talking about the 300,000 New Zealanders living with a rare disease,” says Lisa. “Rare is part of our communities and deserves a fair go.”

TV3 Newshub 6pm News


TV3 Newshub The AM Show


Newstalk ZB The Mike Hosking Breakfast Show


Radio New Zealand National Programme – Jesse Mulligan Show


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