Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.

Lisa spoke about the need for a National Rare Disorder Framework, as well as the challenges facing people living with a rare disease and their families.

“This media attention means that policy makers and the general public will be talking about the 300,000 New Zealanders living with a rare disease,” says Lisa. “Rare is part of our communities and deserves a fair go.”

TV3 Newshub 6pm News

https://www.newshub.co.nz/home/new-zealand/2020/02/mother-of-two-kids-with-rare-disorders-wants-government-help.html

TV3 Newshub The AM Show

https://www.newshub.co.nz/home/lifestyle/2020/02/the-rarest-disorders-in-nz.html

Newstalk ZB The Mike Hosking Breakfast Show

https://www.newstalkzb.co.nz/on-air/mike-hosking-breakfast/audio/lisa-foster-campaign-launched-to-raise-awareness-for-people-living-with-rare-health-disorders/

Radio New Zealand National Programme – Jesse Mulligan Show

https://www.rnz.co.nz/national/programmes/afternoons/audio/2018736231/fair-for-rare-campaign-launched-today

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