Dec 16, 2021, 12:27 AM
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Today marks a historic moment for people living with rare disorders around the globe, as the UN General Assembly adopts the first-ever UNGA Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”.

The Resolution was adopted by consensus by the UN Third Committee on 15 November 2021; supported by all UN member states and co-sponsored by 54 countries. The final text requires however, being formally accepted by the UN General Assembly before it can be considered an official UN Resolution, and this will be happening at a meeting of the 76th UN General Assembly today.

Getting to this moment is the result of tireless advocacy by the rare disorder community, who have been calling for a Resolution to bring global recognition and attention to the 300 million people around the world living with a rare disease and their whānau.

This Resolution will be hugely beneficial to both international and national efforts to improve the lives of people living with rare disorders.

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