News
The latest updates from RDNZ and the rare disorder community.
MSD makes temporary changes as part of COVID-19 response
The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response.
Media statement: Recent PHARMAC funding decisions
You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding plan.
CE update - together we are strong
Here at Rare Disorders NZ we have been busy asking, listening and providing a voice to the Government to ensure the needs of people with rare disorders are included in their planning.
Media release: Rare Disorders NZ provides vital voice for vulnerable group
RDNZ commends the Government for ensuring there is a way for the rare disorder community’s concerns to be heard and needs to be met.
Resilience webinar for the rare disorder community
RDNZ hosted a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.
Ministry of Social Development update
Update from the Ministry of Social Development of support available during the COVID-19 crisis.
New website for carers
Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.
Open letter to the Prime Minister on behalf of the rare disorder community
Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.
Rare Disease Day campaign a success
A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.
NZ Voice of Rare Disorders White Paper
In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.