The latest updates from RDNZ and the rare disorder community.
A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.
In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.
Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.
Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.
The Rare Beer, a very special brew, was launched in Wellington last Wednesday.
Time is of the essence for a Nelson man with a rare genetic condition that causes his tissue to turn to bone.
A nationwide campaign to raise awareness and money for the 300,000 New Zealanders living with a rare disorder was launched last month by Rare Disorders NZ.
Craft beer fans in Wellington and Auckland will have the chance to experience a very special brew for Rare Disease Day at the end of the month.
Rare Disorders NZ congratulates campaigners after PHARMAC announced their decision to fund a medicine for people living with cystic fibrosis in New Zealand.
A nationwide campaign to raise awareness for the 300,000 New Zealanders living with a rare disorder is to be launched at the Grand Hall in Parliament on Friday 28 February.