The latest updates from RDNZ and the rare disorder community.
The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response.
You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding plan.
Here at Rare Disorders NZ we have been busy asking, listening and providing a voice to the Government to ensure the needs of people with rare disorders are included in their planning.
RDNZ commends the Government for ensuring there is a way for the rare disorder community’s concerns to be heard and needs to be met.
RDNZ hosted a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.
Update from the Ministry of Social Development of support available during the COVID-19 crisis.
Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.
Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.
A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.
In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.