“No country can claim to have achieved universal healthcare if it has not adequately and equitably met the needs of those with rare diseases.” Helen Clark, United Nations
Fair for Rare NZ
In this section
Sign and promote our petition calling for the development of a National Rare Disorder Framework.
RDNZ has created resources to enable all people living with a rare disorder and their whanau to share their own story and support the Fair for Rare NZ campaign.
Here is a toolkit of resources to help supporters meet their local MP to share their stories.
RDNZ asked all the major political parties for their commitment to the strategic priorities within the National Rare Disorder Framework.