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  •   Donate to RDNZ
      Sign our Petition
      Find a support group
  • Fair for Rare NZ Fair for Rare NZ campaign Parliamentary Petition Campaign resources Meet your MP Political party positions Campaign endorsement
  • Patient support Find a support group Setting up a support group Patient services Patient resources COVID-19 resources
  • About rare disorders What is a rare disorder? Facts and figures Voice of Rare Disorders White Paper Stories project Rare Disease Day Rare disorder databases Clinical resources
  • About RDNZ What we do News Partner organisations Round Table of Companies Our people Submissions Newsletters Events
  • Get involved Donate Sign the Petition Bequests Share your story Contact your MP
  • Contact us

Campaign resources

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  3. Campaign resources

RDNZ has created resources to enable all people living with a rare disorder and their whanau to share their own story and support the Fair for Rare NZ campaign.

Fair for Rare NZ campaign booklet

Key messages from the campaign

Voice of Rare Disorders White Paper

White Paper one-page summary

APEC Action Plan on Rare Diseases

Parliamentary Petition - paper copy

Letter to Prime Minister - template

Fair for Rare NZ media tips

Impact of living with a rare disorder in NZ - infographic

Briefing to Incoming Minister of Health (BIM)

Campaign endorsement document

Royal New Zealand College of GPs (endorsement letter)

  • Fair for Rare NZ campaign
  • Parliamentary Petition
  • Campaign resources
  • Meet your MP
    • MP meetings 2020
  • Political party positions
  • Campaign endorsement
Contact Details

Rare Disorders NZ
PO Box 14-313
Kilbirnie
Wellington 6241

Registered Charity CC22512

More information
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