Rare Disorders New Zealand
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About Rare

  • What is a rare disorder?
  • Rare disorders in NZ
  • 7 priorities for rare
  • BERL Insights Report
  • Rare Disorders Strategy
  • Resources & Reports
  • Research
  • Clinical Resources
  • Impact of rare disorders
  • Extending whole genome analysis into healthcare
  • Advocacy
  • 2024 white paper
  • Impact for Whānau Māori
  • Te Aka Whai Ora Report 2024
  • Reflections on the Rare Disorders Strategy
  • Strategy implementation
  • Invisible inequity
  • Access to rare medicines
  • Coding of rare disorders
  • How the Strategy came to be

Get Support

  • Patient resources
  • Parent & Caregiver Guide
  • Self advocacy
  • Work and Income
  • Disability funding
  • Other financial support
  • Navigating services & supports
  • Mental health
  • Transition to independent living
  • genetic testing

Get Involved

  • Make a donation
  • Share your story
  • Shop
  • Sign our Petition
  • Contact your local MP
  • Rare Disorders Month
  • Light up for Rare
  • Leave a lasting legacy
  • Tattoo Campaign
  • For schools
  • One Percent Collective
  • Payroll giving
  • Run for Rare
  • for support groups
  • Morning tea guide
  • Colour run guide
  • Social media
  • Paint and Sip guide
  • For workplaces
  • Morning tea guide for work
  • Essay Competition
  • Running with a rare disorder
  • Running for a cause
  • Events

About Us

  • About RDNZ
  • What we do
  • Annual Reports
  • The Rare Disorder Collective
  • Partners and Supporters
  • Round Table of Companies
  • Research Network
  • Rare Support Centre Aotearoa
  • Vacancies
  • Clinical Advisory Panel
  • CPGRD
  • Contact us

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