Rare Disorders NZ

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In 2012, my brother Andrew became very unwell.

We advocate for better healthcare for the 300,000 New Zealanders living with a rare disorder and their families.

James was a delightful Wellington toddler when his family were told that he had a rare disorder.

Craft beer fans in Wellington and Auckland will have the chance to experience a very special brew for Rare Disease Day at the end of the month.

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Here are some resources created for people living with a rare disorder and their family by Rare Disorders NZ and our expert advisers.

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Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.

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