Rare Disorders NZ

Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.

Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.

In 2012, my brother Andrew became very unwell.

PDF, 986 KB

PDF, 1.1 MB

JPG, 37 KB

Here are some resources created for people living with a rare disorder and their family by Rare Disorders NZ and our expert advisers.

Rare Disorders NZ (RDNZ) welcomes the recommendations within the New Zealand Health and Disability System Review.

1.

A time of change, challenge and new ways of living face us all.

Search Results