Resilience webinar for the rare disorder community
Please join us for a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.
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NZ Voice of Rare Disorders White Paper
In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.
Rare Disorders NZ: April update
Rare is everywhere: meet Susan"Upon arriving at a hospital for any medical support, nearly every staff member has NO IDEA what they are dealing with." Chief Executive's updateThe whole world has changed, and these are unprecedented and uncertain times.
CE update - together we are strong
The whole world has changed, and these are unprecedented and uncertain times.
Media release: Rare Disorders NZ provides vital voice for vulnerable group
People living with rare disorders are vulnerable in the current pandemic and need extra support to ensure their voices are heard.
COVID-19 resources
The RDNZ team is here to support the rare disorder community during the current COVID-19 crisis.
Media statement: Recent PHARMAC funding decisions
You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding plan.
MSD makes temporary changes as part of COVID-19 response
The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response.
Voice of Rare Disorders White Paper
In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.
Media statement – PHARMAC’s funding increase
Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding by $160 million over four years.