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What we do
RDNZ is the respected voice of rare disorders in New Zealand.
Stories project
Meet some of the 300,000 people living with a rare disorder in New Zealand.
About rare disorders
Bequests
No matter how small, leaving something to RDNZ in your will really makes a difference for New Zealanders living with a rare disorder.
Olivia's story
Olivia’s mum and dad were first aware that things weren’t going smoothly when Olivia was six weeks old, and not gaining as much weight as expected with a newborn baby.
Clinical resources
RDNZ resources specifically for health professionals.
Media release: Rare Disease Day Awards
The inaugural Rare Disease Day Awards have been established to honour and recognise ordinary people who have made a positive impact through patient support, advocacy, research and clinical practice.
Share your story
Rare is Everywhere and we recognise the power of personal stories.
Allyson's story
I was diagnosed with Pompe Disease at the age of 46, in July 2010.