Research on Parkinson’s disease
Research on a rare form of Parkinson’s disease may have wider benefits for future cancer treatments.
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NZORD funding update
We have signed a new three-year contract with the Ministry of Health, with reduced funding each year.
Human Genetics Society of Australasia (HGSA) August 2019: Winds of Change
The 43rd annual scientific meeting took place on 3-6 August 2019 in Wellington with the theme of Winds of Change to convey the importance of new developments in human genetics and genomics.
Rare Voices Australia: report launched
On 17 October 2019, Rare Voices Australia launched the report, Disability & Rare Disease: Towards Person Centred Care for Australians with Rare Diseases, at Parliament House.
Nelson 12-year-old with rare disorder that slowly robs her of movement
Kaitlyn McAlpine is a fearless mountainbiker but her rare condition means she cannot brush her hair.
James' story
James was a delightful Wellington toddler when his family were told that he had a rare disorder.
Fair for Rare NZ campaign launched at Parliament
Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.
Resilience webinar for the rare disorder community
A time of change, challenge and new ways of living face us all.
MSD makes temporary changes as part of COVID-19 response
The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response.
Media release: Rare Disorders NZ welcomes the Health System Review
Rare Disorders NZ (RDNZ) welcomes the recommendations within the New Zealand Health and Disability System Review.