Carol Gernhoefer

Trustee

Carol is a Chartered Accountant who brings her business acumen to the NZORD board. She has extensive governance experience with not-for-profit organisations and is a board member of Independent Living Services, Stardome Observatory & Planetarium, and formerly Auckland Museum and SANDS Auckland Central. Carol is the founder and editor of Auckland for Kids, an online platform that inspires and enables families with children to enjoy Auckland. Carol lives with her family in Auckland and her eldest daughter has Osteogenesis Imperfecta. Carol joined the NZORD board in 2018.

Carol Gernhoefer

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more