Bi-monthly news and views from the connector hub and collective voice of rare disorders in New Zealand.
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In this issue: • Rare is everywhere: meet Shirley • Chief Executive's update • Fair for Rare NZ campaign launch • Help us help those with a rare disorder • Rare Beer - Cheers for Rare!
In this issue: • Rare is everywhere: meet Adam • Fair for Rare: Chief Executive's update • Rare Disease Day 2020: Launch of Fair for Rare campaign • National commits to ring-fenced fund for rare disorders • APARDO Regional Collaboration for Global Change Summit • Folic acid fortification
In this issue: • Rare is everywhere: meet Carol-Anne • Equity for Rare: Chief Executive's update • Join our call for action: fair healthcare for all • UN recognition for rare disease community • Rare Voices Australia: report launched • Cancer care must include rare diseases
In this issue: • Rare is everywhere: meet Natalie • Lisa Foster's first editorial • Meeting with the Minister of Health • Introducing our new Relationship Manager • Medicines access campaigns • Rare disease researchers and genetics • Rare Disorders NZ AGM