In New Zealand there is no official definition of what is rare.
About rare disorders
In this section
There are more than 6,000 different types of rare disorders, with more being discovered each day.
The purpose of this survey was to collect much-needed data on what it means to live with a rare disorder in New Zealand in 2021.
Almost 300 respondents shared stories of the challenges they face to access healthcare, as well as the impact of living with a rare disorder on education, employment and other areas of life.
Meet some of the 300,000 people living with a rare disorder in New Zealand.
Rare Disease Day takes place on the last day of February and is an annual opportunity to raise awareness.
There are a number of online databases containing detailed information on rare diseases.
RDNZ resources specifically for health professionals.