In this section

Facts and figures

There are more than 6,000 different types of rare disorders, with more being discovered each day.

NZ Voice of Rare Disorders White Paper

Almost 300 respondents shared stories of the challenges they face to access healthcare, as well as the impact of living with a rare disorder on education, employment and other areas of life. 

Stories project

Meet some of the 300,000 people living with a rare disorder in New Zealand.

Rare Disease Day

Rare Disease Day takes place on the last day of February and is an annual opportunity to raise awareness.