Light up for Rare

Buildings and monuments light up for rare on Rare Disease Day

Rare Disease Day is a Global Day of Solidarity for people living with a rare disorder.

Since 2019, significant buildings and landmarks around the world have been illuminated on the last day of February to create a global chain of lights in support of all those affected by rare disorders and their families.

Contact engagement@raredisorders.org.nz if you would like to get involved in this initiative.

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Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.