The work we do to improve healthcare and wellbeing for people and their whānau living with a rare disorder would not be possible without the  support of our partners.


Funding partners

We greatly appreciate the support from our funding partners who enable us to carry out our work advocating for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

  • COGS
  • Frimley Foundation
  • Deane Endowment Trust
  • South Canterbury Trusts
  • Lottery Community Fund
  • TG Macarthy Trust

Our Partners in Aotearoa New Zealand

We work with a number of partner organisations that can support people living with a rare disorder in New Zealand.

We connect rare disorder patients and their families to our partner organisations and help to share relevant information from our partners to the rare disorder community. 


International partners

Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more