Contact your local MP
Help your local MP understand the challenges of living with a rare disorder
Your local MP is responsible for representing their electorate in the House of Representatives. Your voice and your concerns matter to them.
Meeting with your local MP is a powerful way you can get your voice heard at the highest levels.
You don't have to be an expert on all things related to rare disorders. Just talk to them about the challenges you and your whānau have faced. Tell them about the barriers you have met on your journey trying to access services, care or treatment.
Hearing first hand of someone's personal battle is often the most effective way to get a message across.
We encourage you to meet with any MP. If one of the MPs listed below is in your area please prioritise meeting them, as they hold portfolios relevant to rare disorders.
If you are thinking of contacting your local MP let us know! We can give you advice, contact details and send you helpful resources to take with you to your meeting. Email engagement@raredisorders.org.nz.
MPs with portfolios relevant to rare disorders
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