Rare Disorders researchers come together in Christchurch for two-day forum

On 5th and 6th August Rare Disorders NZ, along with the NZ ERDERA National Mirror Group establishment team and the RDNZ Rare Disorders Research Network leadership group hosted a two-day Rare Disorders Research Forum in Christchurch.

The Forum provided rare disorders researchers and stakeholders from around Aotearoa New Zealand and abroad an important opportunity to strengthen connections and determine how the rare disorders research space can best expand and thrive. Developing the infrastructure, capacity, international connectedness and funding for rare disorders research are all essential elements to this.

The rare disorders research sector is an exciting space full of passionate individuals committed to contributing to improving the health and wellbeing of people living with rare disorders and it is wonderful to provide these opportunities to connect and collaborate.

Thank you to Dr. Hamish Campbell MP, Chair of the Cross-Party Parliamentary Group on Rare and Undiagnosed Disorders for opening the event, and to everyone who attended from near and far.