Our mission

To support, assist and promote better health care and wellbeing for patients and their families/​whānau living with a rare disorder in New Zealand.


Latest news

Sep 24, 2019, 2:08 PM
Media release: UN recognition for all people living with a rare disease

Rare Disorders NZ congratulates Rare Diseases International for ensuring that the UN Member States adopted a political declaration on universal health coverage that includes mention of rare diseases.

Sep 2, 2019, 1:24 PM
Media release: People with rare health conditions need equitable treatment

Rare Disorders NZ welcomes the Government’s recent announcement on cancer care and is urging consideration for a wider, inclusive plan to support all New Zealanders with chronic health conditions.

Aug 28, 2019, 11:08 AM
Rare Disorders NZ AGM

The Annual General Meeting of Rare Disorders NZ will take place on Thursday 26 September from 10-10.30am at our offices in Newtown.

Aug 28, 2019, 11:01 AM
Rare Disease Researchers’ Special Interest Group

The second Rare Disease Researchers’ Special Interest Group meeting with 14 key researchers in the fields of rare diseases took place on 2 August 2019 in Wellington at Victoria University’s Rutherford House.

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