Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder


Latest news

Aug 2, 2021, 11:53 AM
Rare Disorders NZ AGM

The Annual General Meeting of Rare Disorders NZ will take place on Wednesday 22 September from 10-10.30am at our offices in Newtown.

Jul 14, 2021, 1:22 PM
PHARMAC Review panel presentation

RDNZ presented a collective response on behalf of all those with medicines access issues who live with a rare disorder to the PHARMAC Review Panel last month.

Jul 8, 2021, 11:51 AM
Government to mandate folic acid in flour to protect babies

RDNZ has campaigned for more than a decade for the addition of folic acid to flour to reduce the number of babies born with neural tube defects.

Jul 2, 2021, 1:10 PM
Ministry of Health meeting: raising awareness of rare disorders

RDNZ recently organised a meeting with Ministry of Health officials to amplify the collective voice of people living with a rare disorder, with a focus on GP awareness and education.

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