Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Webinar: pain management for rare disorders
Last week Dr Buzz Burrell hosted a webinar focusing on managing pain for a person's own chronic health condition or on behalf of someone they support.
Media release: Rare Disorders NZ supports Human Rights Commission case against PHARMAC
Rare Disorders NZ (RDNZ) supports patient advocate Fiona Tolich’s Human Rights Commission case against PHARMAC for failing to fund a rare muscular disorder drug.
Auckland 44yo fitted with pacemaker due to rare disease now fighting for others
A 44-year-old man had to be fitted with a pacemaker after he collapsed while making coffee for his wife.
Rare Disorders NZ AGM
The Annual General Meeting of Rare Disorders NZ will take place on Wednesday 23 September from 10-10.30am at our offices in Newtown.