Our mission
To support, assist and promote better health care and wellbeing for patients and their families/whānau living with a rare disorder in New Zealand.
Latest news
Media release: Announcement of new Chief Executive
Rare Disorders NZ is thrilled to confirm the appointment of Lisa Foster as Chief Executive.
Media release: NZORD changes name to Rare Disorders NZ
Today the New Zealand Organisation for Rare Disorders changes its name after 19 years of supporting thousands of families living with rare health conditions.
Outcome of February 2019 PTAC meeting
Kia ora Gill, I wanted to touch base to let you know that we have published the advice and recommendations from the February 2019 Pharmacology and Therapeutics Advisory Committee (PTAC) meeting.
Media release: NZORD supports rare medicine petitions to government
The National Organisation for Rare Disorders (NZORD) supports petitions for more effective, equitable outcomes for people with rare disorders, as part of a comprehensive, strategic approach for this vulnerable group of over 377,000 New Zealanders, half of whom are children.