Raising the rare voice

We are the respected voice for rare disorders in New Zealand.  We advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition. 

About us Follow our work on the Strategy

Rare News

Rare Stories

Connect with us

Keep up to date with our work by signing up to our regular newsletter.
We contact our supporters roughly once per month, and you can unsubscribe at any time.



Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more