Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
UN General Assembly formally adopts Resolution on Persons Living with a Rare Disease and their Families
Today marks a historic moment for people living with rare disorders around the globe, as the UN General Assembly adopts the first-ever UNGA Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”.
RDNZ Submission on Pae Ora (Healthy Futures) Bill
Rare Disorders NZ has made a submission to the Pae Ora Legislative Committee on the Pae Ora (Healthy Futures) Bill.
Open letter to the Government to establish an innovative acceleration fund for PHARMAC
ASK: Establish an innovative acceleration fund for PHARMAC to reduce pressure on the NZ health system.
Children with rare disorders share messages with the Prime Minister
To mark International Children’s Day, messages from children from the rare disorder community throughout New Zealand will be handed to the Prime Minister to tell her what it means to live with a rare disorder.