Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
New website for carers
Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.
Open letter to the Prime Minister on behalf of the rare disorder community
Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.
Rare Disease Day campaign a success
A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.
Fair for Rare NZ campaign launched at Parliament
Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.