Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Fair for Rare NZ campaign update
Now that New Zealand is opening up after the COVID-19 lockdown, we are ready to re-ignite our collective call for fairness for people with rare disorders.
Media statement – PHARMAC’s funding increase
Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding by $160 million over four years.
MSD makes temporary changes as part of COVID-19 response
The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response.
Media statement: Recent PHARMAC funding decisions
You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding plan.