Our mission
To support, assist and promote better health care and wellbeing for patients and their families/whānau living with a rare disorder in New Zealand.
Latest news
Media release: UN recognition for all people living with a rare disease
Rare Disorders NZ congratulates Rare Diseases International for ensuring that the UN Member States adopted a political declaration on universal health coverage that includes mention of rare diseases.
Media release: People with rare health conditions need equitable treatment
Rare Disorders NZ welcomes the Government’s recent announcement on cancer care and is urging consideration for a wider, inclusive plan to support all New Zealanders with chronic health conditions.
Rare Disorders NZ AGM
The Annual General Meeting of Rare Disorders NZ will take place on Thursday 26 September from 10-10.30am at our offices in Newtown.
Rare Disease Researchers’ Special Interest Group
The second Rare Disease Researchers’ Special Interest Group meeting with 14 key researchers in the fields of rare diseases took place on 2 August 2019 in Wellington at Victoria University’s Rutherford House.