Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Letter to the NZ Ambassador to the UN about rare disease resolution
Our CE, Lisa Foster, has written to the NZ Ambassador to the UN to request NZ adopt the UN resolution on addressing the challenges of people living with a rare disease and their families.
PVA protest at Parliament
Rare Disorders NZ and our rare disorder collective attended the Lie Down for Life at Parliament yesterday.
Media release: Health access must be based on need not diagnosis as disease does not discriminate
Rare Disorders NZ (RDNZ) supports Patient Voice Aotearoa’s nationwide ‘Lie Down for Life’ to call for better access to modern medicines for genetic, undiagnosed and rare disorders.
Mental Health and Wellbeing Commission
RDNZ’s Chief Executive Lisa Foster attended the launch of the Mental Health and Wellbeing Commission in Wellington yesterday.