Raising the rare voice
We are the respected voice for rare disorders in New Zealand.
We advocate for access to world class and world leading health, disability, education and other services for the 300,000 New Zealanders living with a rare disorder.
Rare News
Rare Stories
Kayla's story
“This disease is like a sleeping dragon,” the doctor said. “You might have periods of remission, when the dragon sleeps, but it will wake again and you will flare. You’re going to have to adapt your life to manage this illness.” I cried very briefly in the car, then wiped my face and drove home to my infant son. I’d always known I was developing some form of arthritis, I just didn’t think it wou…
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
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