Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Resilience webinar for the rare disorder community
Please join us for a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.
Ministry of Social Development update
Update from the Ministry of Social Development of support available during the COVID-19 crisis.
New website for carers
Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.
Open letter to the Prime Minister on behalf of the rare disorder community
Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.