Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Media release: “It’s time to make the 300,000 families affected by rare disorders a health priority”
Sue Haldane, a mother of a child with a rare disorder, has spent 17 years dealing with barriers within our health system to ensure her daughter Lizzie’s needs are met. Now Sue is determined that the journey will be easier for future generations of New Zealanders living with a rare disorder.
Media release: Rare Disorders NZ welcomes the Health System Review
Rare Disorders NZ welcomes the recommendations within the New Zealand Health and Disability System Review. This Review seeks to make long term improvements which would benefit all New Zealanders including those with a rare disorder.
Report from ECRD and RDI virtual conferences
RDNZ’s Chief Executive Lisa Foster attended two major European conferences in May.
Fair for Rare NZ campaign update
Now that New Zealand is opening up after the COVID-19 lockdown, we are ready to re-ignite our collective call for fairness for people with rare disorders.