Raising the rare voice
We are the respected voice for rare disorders in New Zealand.
We advocate for access to world class and world leading health, disability, education and other services for the 300,000 New Zealanders living with a rare disorder.
Rare News
Rare Stories
Courtney's story
My name is Courtney and I am a 25-year-old Occupational Therapy student. I would like to share my experience with Complex Regional Pain Syndrome (CRPS), but first let me express what I am like as a person. I’m someone who loves nature and animals (the annoying person who stops the traffic to let the ducklings cross the road!), making people laugh, music, visiting new places, and learning new thin…
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
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