Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder


Latest news

Nov 25, 2020, 12:41 PM
Briefing to Incoming Minister

Rare Disorders NZ has sent a Briefing to new Minister of Health Andrew Little on behalf of the rare disorder community.

Nov 24, 2020, 1:29 PM
Webinar: Finding a needle in the haystack: a genetic diagnosis for a one-in-a-million condition

On Monday Dr Louise Bicknell of Otago University hosted a webinar focusing on genetics and rare disorder research.

Nov 11, 2020, 1:42 PM
Webinar: rare disorder support group advocacy

This week advocacy expert Penny Tucker hosted a webinar to give our support groups advocacy tools.

Nov 8, 2020, 2:28 PM
Promoting awareness of rare disorders

Rare Disorders NZ hosted a stand at the New Zealand Respiratory Conference at Te Papa last week.

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