Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder


Latest news

Nov 8, 2020, 2:28 PM
Promoting awareness of rare disorders

Rare Disorders NZ hosted a stand at the New Zealand Respiratory Conference at Te Papa last week.

Oct 18, 2020, 4:09 PM
Webinar: pain management for rare disorders

Last week Dr Buzz Burrell hosted a webinar focusing on managing pain for a person's own chronic health condition or on behalf of someone they support.

Sep 16, 2020, 6:56 PM
Media release: Rare Disorders NZ supports Human Rights Commission case against PHARMAC

Rare Disorders NZ (RDNZ) supports patient advocate Fiona Tolich’s Human Rights Commission case against PHARMAC for failing to fund a rare muscular disorder drug.

Aug 25, 2020, 4:25 PM
Auckland 44yo fitted with pacemaker due to rare disease now fighting for others

A 44-year-old man had to be fitted with a pacemaker after he collapsed while making coffee for his wife.

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