Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
New strategy to accelerate diagnosis and improve treatment of rare diseases in the UK
The new framework will raise awareness of rare diseases, speed up diagnosis and improve care and treatment.
Rare disorders: Charity aiding thousands of Kiwi families fears closure (NZ Herald)
A lifeline for thousands of Kiwi families fighting crippling rare disorders fears closure due to financial woes.
Make a submission on the Sick Leave bill
There is an opportunity to make submissions on the extension of the sick leave bill, a positive initiative for people living with a rare disorder and their carers.
Briefing to Incoming Minister
Rare Disorders NZ has sent a Briefing to new Minister of Health Andrew Little on behalf of the rare disorder community.