Our mission

To support, assist and promote better health care and wellbeing for patients and their families/​whānau living with a rare disorder in New Zealand.


Latest news

Aug 21, 2019, 1:54 PM
Media release: Rare Disorders NZ supports patient advocates

Rare Disorders NZ supports all people living with a chronic health condition who are brave enough to share their experiences with the media to advocate for changes in the health system.

Jul 30, 2019, 2:12 PM
Media release: Medicines access for cancer must also be Fair for Rare

Rare Disorders NZ welcomes the National Party’s recent announcement on cancer care but calls on both the opposition and the coalition government to widen their medicines access proposals beyond cancer to include provision for people living with rare disorders.

Jun 27, 2019, 12:33 PM
Media release: Announcement of new Chief Executive

Rare Disorders NZ is thrilled to confirm the appointment of Lisa Foster as Chief Executive.

Jun 5, 2019, 12:21 PM
Media release: NZORD changes name to Rare Disorders NZ

Today the New Zealand Organisation for Rare Disorders changes its name after 19 years of supporting thousands of families living with rare health conditions.

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