To support, assist and promote better health care and wellbeing for patients and their families/whānau living with a rare disorder in New Zealand.
Rare Disorders NZ supports all people living with a chronic health condition who are brave enough to share their experiences with the media to advocate for changes in the health system.
Rare Disorders NZ welcomes the National Party’s recent announcement on cancer care but calls on both the opposition and the coalition government to widen their medicines access proposals beyond cancer to include provision for people living with rare disorders.
Rare Disorders NZ is thrilled to confirm the appointment of Lisa Foster as Chief Executive.
Today the New Zealand Organisation for Rare Disorders changes its name after 19 years of supporting thousands of families living with rare health conditions.