Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Rare Disorders NZ hosted a stand at the New Zealand Respiratory Conference at Te Papa last week.
Last week Dr Buzz Burrell hosted a webinar focusing on managing pain for a person's own chronic health condition or on behalf of someone they support.
Rare Disorders NZ (RDNZ) supports patient advocate Fiona Tolich’s Human Rights Commission case against PHARMAC for failing to fund a rare muscular disorder drug.
A 44-year-old man had to be fitted with a pacemaker after he collapsed while making coffee for his wife.