Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
The new framework will raise awareness of rare diseases, speed up diagnosis and improve care and treatment.
A lifeline for thousands of Kiwi families fighting crippling rare disorders fears closure due to financial woes.
There is an opportunity to make submissions on the extension of the sick leave bill, a positive initiative for people living with a rare disorder and their carers.
Rare Disorders NZ has sent a Briefing to new Minister of Health Andrew Little on behalf of the rare disorder community.