Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Media release: Fair for Rare NZ to launch at Parliament
A nationwide campaign to raise awareness for the 300,000 New Zealanders living with a rare disorder is to be launched at the Grand Hall in Parliament on Friday 28 February.
Nelson 12-year-old with rare disorder that slowly robs her of movement
Kaitlyn McAlpine is a fearless mountainbiker but her rare condition means she cannot brush her hair.
National commits to ring-fenced fund
Our CE Lisa Foster and Nicola Swan from SWAN NZ attended the launch of National's Health Discussion document last week.
Rare Beer brewers needed
As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer.