Fair for Rare NZ

It's time to take rare conditions seriously

Join our call for a National Rare Disorder Framework

Rare is everywhere

Rare Disorders NZ (formerly NZORD) amplifies the voices of all New Zealanders living with a rare health condition.

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder

Nov 25, 2020, 12:41 PM

Rare Disorders NZ has sent a Briefing to new Minister of Health Andrew Little on behalf of the rare disorder community.

Nov 24, 2020, 1:29 PM

On Monday Dr Louise Bicknell of Otago University hosted a webinar focusing on genetics and rare disorder research.

Nov 11, 2020, 1:42 PM

This week advocacy expert Penny Tucker hosted a webinar to give our support groups advocacy tools.

Nov 8, 2020, 2:28 PM

Rare Disorders NZ hosted a stand at the New Zealand Respiratory Conference at Te Papa last week.