Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder


Latest news

May 5, 2021, 6:14 PM
Media release: Health access must be based on need not diagnosis as disease does not discriminate

Rare Disorders NZ (RDNZ) supports Patient Voice Aotearoa’s nationwide ‘Lie Down for Life’ to call for better access to modern medicines for genetic, undiagnosed and rare disorders.

Apr 14, 2021, 4:01 PM
Mental Health and Wellbeing Commission

RDNZ’s Chief Executive Lisa Foster attended the launch of the Mental Health and Wellbeing Commission in Wellington yesterday.

Mar 29, 2021, 1:00 AM
Fair for Rare NZ campaign milestone

Last Wednesday RDNZ’s collective petition calling for urgent reform of the health system to include all people living with a rare disorder was handed over at Parliament.

Mar 17, 2021, 5:34 PM
Media release: Are the odds fair on Rare Roulette?

Living with a rare health condition can be a genetic lottery as well as a complete game of chance in terms of the support and healthcare available in New Zealand.

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