Rare is everywhere

Rare Disorders NZ (formerly NZORD) amplifies the voices of all New Zealanders living with a rare health condition.

Meet some of the 300,000 people living with a rare disorder in New Zealand.

Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder

Dec 10, 2019, 10:47 AM

As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer.

Nov 18, 2019, 1:02 PM

This survey is open to anyone who is living with a rare disorder in NZ, as well as their family members and carers.

Nov 13, 2019, 10:07 AM

Rare Disorders NZ supports mandatory fortification of bread with folic acid to reduce neural tube defects.

Nov 5, 2019, 11:06 AM

Lisa Foster was an invited speaker at the Asia Pacific Alliance of Rare Disease Organisations (APARDO) summit in Taiwan last month.