Our mission

To support, assist and promote better health care and wellbeing for patients and their families/​whānau living with a rare disorder in New Zealand.


Latest news

Jun 27, 2019, 12:33 PM
Media release: Announcement of new Chief Executive

Rare Disorders NZ is thrilled to confirm the appointment of Lisa Foster as Chief Executive.

Jun 5, 2019, 12:21 PM
Media release: NZORD changes name to Rare Disorders NZ

Today the New Zealand Organisation for Rare Disorders changes its name after 19 years of supporting thousands of families living with rare health conditions.

May 9, 2019, 6:00 PM
Outcome of February 2019 PTAC meeting

Kia ora Gill, I wanted to touch base to let you know that we have published the advice and recommendations from the February 2019 Pharmacology and Therapeutics Advisory Committee (PTAC) meeting.

Apr 23, 2019, 4:59 PM
Media release: NZORD supports rare medicine petitions to government

The National Organisation for Rare Disorders (NZORD) supports petitions for more effective, equitable outcomes for people with rare disorders, as part of a comprehensive, strategic approach for this vulnerable group of over 377,000 New Zealanders, half of whom are children.

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