Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Media release: Health access must be based on need not diagnosis as disease does not discriminate
Rare Disorders NZ (RDNZ) supports Patient Voice Aotearoa’s nationwide ‘Lie Down for Life’ to call for better access to modern medicines for genetic, undiagnosed and rare disorders.
Mental Health and Wellbeing Commission
RDNZ’s Chief Executive Lisa Foster attended the launch of the Mental Health and Wellbeing Commission in Wellington yesterday.
Fair for Rare NZ campaign milestone
Last Wednesday RDNZ’s collective petition calling for urgent reform of the health system to include all people living with a rare disorder was handed over at Parliament.
Media release: Are the odds fair on Rare Roulette?
Living with a rare health condition can be a genetic lottery as well as a complete game of chance in terms of the support and healthcare available in New Zealand.