Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder

 

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Oct 18, 2021, 12:58 PM
Children’s Day 2021 colouring competition

The Kōtare (sacred kingfisher) is a taonga of Aotearoa New Zealand. It is common, but is not often seen. That’s why they’re a perfect symbol for rare disorders. As part of our ongoing ‘Fair For Rare’ campaign, we’re running a colouring competition for Children’s Day 2021 (November 20)

Oct 13, 2021, 10:43 AM
Rare Disorders NZ: October Update

In this issue.  International Children's Day Colouring Competition, Health Select Committee Hearing, Wellington Rare Disorder Catchup, The Medicine Gap, COVID Vaccine Update

Oct 12, 2021, 5:39 PM
Submission to the “Consultation on content for the 2023 10-year New Zealand Disability Survey”

Rare Disorders NZ has made a submission to the “Consultation on content for the 2023 10-year New Zealand Disability Survey” on behalf of the rare disorder community as we do not feel those with a rare disorder have been included in the survey questions

Aug 16, 2021, 2:38 PM
Ministry of Health recommendation not to proceed with a rare disorder national framework

The Ministry of Health does not recommend the development of a national framework for rare disorders at this stage.

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