Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
The Annual General Meeting of Rare Disorders NZ will take place on Wednesday 22 September from 10-10.30am at our offices in Newtown.
RDNZ presented a collective response on behalf of all those with medicines access issues who live with a rare disorder to the PHARMAC Review Panel last month.
RDNZ has campaigned for more than a decade for the addition of folic acid to flour to reduce the number of babies born with neural tube defects.
RDNZ recently organised a meeting with Ministry of Health officials to amplify the collective voice of people living with a rare disorder, with a focus on GP awareness and education.