Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder


Latest news

May 25, 2020, 5:30 PM
Fair for Rare NZ campaign update

Now that New Zealand is opening up after the COVID-19 lockdown, we are ready to re-ignite our collective call for fairness for people with rare disorders.

May 10, 2020, 9:28 PM
Media statement – PHARMAC’s funding increase

Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding by $160 million over four years.

Apr 29, 2020, 1:52 PM
MSD makes temporary changes as part of COVID-19 response

The Ministry of Social Development (MSD) has made some temporary changes to document requirements as part of the COVID-19 response.

Apr 22, 2020, 7:18 PM
Media statement: Recent PHARMAC funding decisions

You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding plan.

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