Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder

 

Latest news

Apr 6, 2020, 6:01 PM
Resilience webinar for the rare disorder community

Please join us for a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.

Apr 5, 2020, 1:42 PM
Ministry of Social Development update

Update from the Ministry of Social Development of support available during the COVID-19 crisis.

Mar 29, 2020, 4:57 PM
New website for carers

Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.

Mar 25, 2020, 4:41 PM
Open letter to the Prime Minister on behalf of the rare disorder community

Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.

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