Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder


Latest news

Jan 13, 2020, 6:03 PM
Media release: Fair for Rare NZ to launch at Parliament

A nationwide campaign to raise awareness for the 300,000 New Zealanders living with a rare disorder is to be launched at the Grand Hall in Parliament on Friday 28 February.

Dec 23, 2019, 2:05 PM
Nelson 12-year-old with rare disorder that slowly robs her of movement

Kaitlyn McAlpine is a fearless mountainbiker but her rare condition means she cannot brush her hair. 

Dec 16, 2019, 1:47 PM
National commits to ring-fenced fund

Our CE Lisa Foster and Nicola Swan from SWAN NZ attended the launch of National's Health Discussion document last week.

Dec 10, 2019, 10:47 AM
Rare Beer brewers needed

As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer.

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