Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Promoting awareness of rare disorders
Rare Disorders NZ hosted a stand at the New Zealand Respiratory Conference at Te Papa last week.
Webinar: pain management for rare disorders
Last week Dr Buzz Burrell hosted a webinar focusing on managing pain for a person's own chronic health condition or on behalf of someone they support.
Media release: Rare Disorders NZ supports Human Rights Commission case against PHARMAC
Rare Disorders NZ (RDNZ) supports patient advocate Fiona Tolich’s Human Rights Commission case against PHARMAC for failing to fund a rare muscular disorder drug.
Auckland 44yo fitted with pacemaker due to rare disease now fighting for others
A 44-year-old man had to be fitted with a pacemaker after he collapsed while making coffee for his wife.