Our mission

Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder

 

Latest news

Jun 9, 2021, 10:37 AM
Letter to the NZ Ambassador to the UN about rare disease resolution

Our CE, Lisa Foster, has written to the NZ Ambassador to the UN to request NZ adopt the UN resolution on addressing the challenges of people living with a rare disease and their families.

May 17, 2021, 7:13 PM
PVA protest at Parliament

Rare Disorders NZ and our rare disorder collective attended the Lie Down for Life at Parliament yesterday.

May 5, 2021, 6:14 PM
Media release: Health access must be based on need not diagnosis as disease does not discriminate

Rare Disorders NZ (RDNZ) supports Patient Voice Aotearoa’s nationwide ‘Lie Down for Life’ to call for better access to modern medicines for genetic, undiagnosed and rare disorders.

Apr 14, 2021, 4:01 PM
Mental Health and Wellbeing Commission

RDNZ’s Chief Executive Lisa Foster attended the launch of the Mental Health and Wellbeing Commission in Wellington yesterday.

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