Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer.
This survey is open to anyone who is living with a rare disorder in NZ, as well as their family members and carers.
Rare Disorders NZ supports mandatory fortification of bread with folic acid to reduce neural tube defects.
Lisa Foster was an invited speaker at the Asia Pacific Alliance of Rare Disease Organisations (APARDO) summit in Taiwan last month.