Our mission
Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Open letter to the Prime Minister on behalf of the rare disorder community
Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.
Rare Disease Day campaign a success
A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.
Fair for Rare NZ campaign launched at Parliament
Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.
Rare Disease Day media
Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.