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Join us in supporting over 300,000 Kiwis living with a rare disorder

At Rare Disorders NZ, we work tirelessly to achieve equitable healthcare and improved wellbeing for individuals and families affected by rare disorders.

Your regular gifts can make a significant difference.

Whether you choose to donate $15 $30, $50, $70, $100 or more, every contribution counts.

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Other ways to support us

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Payroll giving

Payroll giving is an effortless way to donate regularly to Rare Disorders NZ. Making a small donation each week makes a big difference over time.

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Leave a lasting legacy

Leaving a gift in your will is a powerful way to ensure that your legacy continues to support the 300,000 Kiwis living with rare disorders.

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One Percent Collective

One Percent Collective makes it super-easy to donate regularly with one simple signup. Give as much as you like, as often as you like.

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Why your support matters

Living with a rare disorder can be incredibly challenging. Many individuals face significant barriers to receiving timely and effective healthcare.

Your donations enable us to

Empower patients

We support individuals, families and support groups to advocate for themselves. We help facilitate meetings with decision makers and assist with submissions and petitions.

Amplify the rare voice

We voice the shared concerns of the rare disorder community at the highest decision making levels, and we provide a central point for Government to communicate with the rare disorder community.

Connect people and information

We facilitate connections to individual support groups and to information and resources, helping people feel connected and supported.

Make rare visible

Through awareness campaigns and events we keep rare disorders on the radar of health professionals and politicians, and educate the general public about rare disorders.

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Thank you so much for taking the time to chat with me, it really helped to not feel isolated.

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Together, we can create a brighter future for people living with rare disorders. Your support is the key to making this vision a reality. Your support is crucial in helping us achieve our mission and create a more inclusive and equitable health system for all.

Donate Now and be a part of the change.

Thank you for your generous support.


Please see our privacy statement.

Did you know?

You’re able to claim a tax credit for donations made to a charitable organisation? For more information, visit the IRD website.

Connect with us

Keep up to date with our work by signing up to our regular newsletter. We contact our supporters roughly once per month, and you can unsubscribe at any time.



Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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