Get involved in the New Zealand rare disease community and help RDNZ.

In this section


We rely on grants and donations to continue improving information and support for patients, their family and professionals, as well as advocate for systemic change.


No matter how small, leaving something to RDNZ in your will really makes a difference for New Zealanders living with a rare disorder.

Share your story

Rare is Everywhere and we recognise the power of personal stories.

Contact your MP

Share your experience and challenges of living with a rare disorder with your local MP.