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Your donation makes a difference
Donate today
Your gift today reminds someone living with a rare disorder that their story matters and they never have to walk this path alone
Your kindness ensures every person living with a rare disorder feels championed by a community that cares.
Why your support matters
Navigating life with a rare disorder is challenging. The health system and support services are built for common conditions, and people can spend years being bounced around the health system in search of a diagnosis and treatment pathway.
Rare Disorders NZ is the only umbrella organisation supporting all New Zealanders affected by a rare disorder and their whānau. We provide a place people can turn to for connection, information, guidance and a community that 'gets it'.
Your donations enable us to...
Empower patients
We support individuals, families and support groups to advocate for themselves. We help facilitate meetings with decision makers and assist with submissions and petitions.
Amplify the rare voice
We voice the shared concerns of the rare disorder community at the highest decision making levels, and we provide a central point for Government to communicate with the rare disorder community.
Connect people and information
We facilitate connections to individual support groups and to information and resources, helping people feel connected and supported.
Make rare visible
Through awareness campaigns and events we keep rare disorders on the radar of health professionals and politicians, and educate the general public about rare disorders.
Other ways to support us
Payroll giving
Payroll giving is an effortless way to donate regularly to Rare Disorders NZ. Making a small donation each week makes a big difference over time.
Leave a lasting legacy
Leaving a gift in your will is a powerful way to ensure that your legacy continues to support the 300,000 Kiwis living with rare disorders.
One Percent Collective
One Percent Collective makes it super-easy to donate regularly with one simple signup. Give as much as you like, as often as you like.
Thank you so much for taking the time to chat with me, it really helped to not feel isolated.
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Did you know?
You’re able to claim a tax credit for donations made to a charitable organisation? For more information, visit the IRD website.
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