We rely on grants and donations to continue improving information and support for patients, their family and professionals.

Improving people's journey through the health system and promoting research into treatments.

No matter how small, your donation really makes a difference for New Zealanders living with a rare disorder. Did you know that you’re able to claim a tax credit for donations made to a charitable organisation? For more information, visit the IRD website.

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We also gratefully accept donations through:

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