In this section

Setting up a support group

A rare disorder support group is a gathering of interested people who come together to provide a support network.

Patient resources

Services and resources that may be helpful for people living with a rare disorder in New Zealand.

Parent & Caregiver Guide

Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New ZealandThis booklet has been created by Rare Disorders New Zealand to help parents and caregivers navigate the path in caring for a child with a rare disorder in New Zealand.

Financial assistance

If you have a rare disorder or you are caring for a person with a rare disorder, you may be entitled to financial assistance from the government.

COVID-19 vaccine information

The Rare Disorders NZ team is here to support the rare disorder community during the current COVID-19 crisis.