Find a support group

Search for support groups using disorder names or conditions.

22q11

Facebook: www.facebook.com/groups/newzealand22q/

ALD Foundation Trust


Email: Please contact Rare Disorders for contact information

Leukodystrophy Resource and Research Organisation  Inc. (ALD Australia)

Website: www.leukodystrophyresourceresearch.org
Facebook: www.facebook.com/LeukodystrophyRRO/

Alpha-1 Association NN

Website: www.alpha1.org.nz
Facebook: www.facebook.com/groups/243392965836983/

The Angelman Network

Website: www.angelman.org.nz
Facebook: www.facebook.com/pg/theangelmannetwork/about/

Lysosomal Diseases New Zealand

Website: www.ldnz.org.nz
Facebook: www.facebook.com/groups/1937725866537173

Fabry Disease Support Group New Zealand

Website: www.fabry.org.nz
Facebook: www.facebook.com/Fabry-Support-Group-New-Zealand-158149027643895/

Fabry Australia

Website: www.fabry.com.au
Facebook: www.facebook.com/FabryAust/

Gaucher Association of Australia & New Zealand Inc

Facebook: www.facebook.com/GaucherANZ/

New Zealand Pompe Network

Website: www.nzpompenetwork.weebly.com
Facebook: www.facebook.com/nzpompe/?ref=hl

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