Patient resources

Here are some resources created for people living with a rare disorder and their family by Rare Disorders NZ and our expert advisers.

• Pain management webinar - Dr Buzz Burrell
• Finding a needle in the haystack: a genetic diagnosis for a one-in-a-million condition webinar - Dr Louise Bicknell
• Rare disorder support group advocacy webinar: email Kim for the recording link
• Rare disorder support group media training webinar: email Kim for the recording link