The RDNZ team and many people living with a rare disorder met their local MP to share their story and explain why the government must commit to the development of a National Rare Disorder Framework.

  • Dr Liz Craig - Labour List MP for Invercargill
  • Hon Andrew Little – Labour Health Minister
  • Hon Carmel Sepuloni - Labour MP for Kelston
  • Hon Chris Hipkins - Labour MP for Rimutaka
  • Julie Anne Genter - Green Party List MP for Auckland
  • Michael Wood - Labour MP for Mt Roskill
  • Jenny Marcroft - NZ First List MP Rodney
  • David Seymour - ACT MP for Epsom
  • Wilf Bearman - Outdoors Party for Lower Hutt
  • Chris Bishop - National MP for Lower Hutt
  • Paul Eagle - Labour MP for Rongotai
  • Dr Deborah Russell - Labour MP for New Lynn
  • Mark Mitchell - National MP for Whangaparaoa
  • Lawrence Yule - National NP for Tukituki
  • Marja Lubeck - Labour MP for Rodney
  • Priyanca Radhakrishnan - Labour List MP for Maungakiekie
  • Robert Gore - NZ First (from Young NZ First)
  • Scott Simpson - National MP for Coromandel
  • Jan Tinetti - Labour MP for Tauranga
  • Chloe Swarbrick – Green Party list MP for Auckland Central
  • Golriz Ghohraman - Green Party list MP
  • Ginny Anderson - Labour MP for Hutt South
  • Brooke Van Velden – ACT Deputy Leader
  • Jaime Strange – Labour MP for Hamilton East
  • Vanushi Walters – Labour MP for Upper Hutt
  • Paula Tesoriero - Disability CommissionerJames McGoram and MP Deborah Russell




MP meeting Jan Tinetti and Helen Willacy

MP Mark Mitchell with Elizabeth Hunt and Christine Turner