As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer. This “collab brew” will be created by members of the rare disorder community, alongside award-winning brewer Dale, using very special ingredients. Our Rare Beer will be distributed to bars throughout Wellington, and it’s a great opportunity to raise awareness as well as funds for our organisation.

We’re looking for beer fans to take part in the brewing process. It will take place on Wednesday 15 January at Fortune Favours brewery in central Wellington. The brewing process goes from 9am to midday, though brew assistants wouldn’t need to be present for the whole period. Once the beer is created, it will develop over four weeks and be ready mid-February. We’re also looking at getting some media along to ensure we can spread the word that Rare is Everywhere. 

If you’re interested in helping create our unique brew and would be happy to share your experience of living with a rare disorder or being a family member to someone who has an uncommon health condition, please get in touch with Amy.

Fortune Favours

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