Submission on proposal to fund supplements for phenylketonuria and other inherited metabolic disease
Rare Disorders NZ welcomes Pharmac expanding the range of supplements available to provide greater choice and improve the lives of people with Phenylketonuria (PKU) and other inherited metabolic disease. However, we also note that while New Zealand is making steps towards meeting internationally recognised standards of care, there is still a way to go in terms of both medication and food/supplement access for those with inherited metabolic disease.
Read the full submission here.