Media coverage
28 February 2023
TVNZ Breakfast
Today FM, James McGoram on Lloyd Burr Drive programme
1 March 2023
Today FM, Diagnosis challenges for rare disorder patients
2 March 2023
NZ Herald, Rare disorders booklet will help ease stress for parents
Te Ao Maori News, Country's first rare disorders month begins
NZ Herald - Kahu, Rare Disorders NZ publishes guide for parents and caregivers
9 March 2023
Today FM, Lloyd Burr Drive Show, Rare Beer Challenge
10 March 2023
RNZ Morning Report, Rare Beer Challenge
One News, Rare Beer Challenge a chance to say cheers for charity
MedNews, Brothers reflect human cost of NZ funding
11 March 2023
One News, Kiwis with rare diseases not reflected in statistics - charity
RNZ, 'It can take 10 years to get a diagnosis' - Kiwis with rare diseases not reflected in statistics
NZ Herald, Kiwis with rare diseases not reflected in statistics: ‘It can take 10 years to get a diagnosis’
16 March 2023
RNZ, Living with a rare disorder
17 March 2023
Stuff, The boy who never eats: A Taranaki family's plea for life-changing treatment
19 March 2023
SunLive, Glow Up and Show Up for rare disorder month
20 March 2023
Coast FM, James McGoram interview (@ 22 min)
29 March 2023
NZ Herald - Kahu, Rare Disorder Months ends on Friday - but it’s an ongoing battle everyday for whānau