We are honoured to have received confirmation that Her Excellency, The Right Honourable Dame Cindy Kiro, GNZM, QSO, Governor-General of New Zealand, has accepted our invitation to become patron of Rare Disorders NZ.  

This is an honour that will be felt widely throughout the rare disorder community in New Zealand; to have the support of someone of such high standing at a pivotal time when the community is calling for recognition and inclusion during the health system reform.

We look forward to involving Her Excellency in our work to support all New Zealanders who live with a rare condition, and the people who care for them. 

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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