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To date the Ministry of Health have developed an outline plan on the scope, engagement and outcomes for the national strategy. The development of the strategy is expected to be completed by the end of 2023.

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more