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The Therapeutic Products Bill, set to replace the Medicines Act 1981, is currently before the Health Select Committee and has received more than 16,500 submissions. While many agree that the Medicines Act 1981 needs updating, there are concerns that some of the wording in the Bill could lead to further barriers to accessing life-saving medicines in New Zealand. The petition and open letter to Government called for a pause to progressing the Therapeutic Products Bill and for consultation and engagement with relevant stakeholders to get the wording right.

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Rare Disorders NZ was also one of 72 organisations supporting the open letter, which you can view below.

 

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more