Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.

Lisa spoke about the need for a National Rare Disorder Framework, as well as the challenges facing people living with a rare disease and their families.

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TV3 Newshub 6pm News

https://www.newshub.co.nz/home/new-zealand/2020/02/mother-of-two-kids-with-rare-disorders-wants-government-help.html

TV3 Newshub The AM Show

https://www.newshub.co.nz/home/lifestyle/2020/02/the-rarest-disorders-in-nz.html

Newstalk ZB The Mike Hosking Breakfast Show

https://www.newstalkzb.co.nz/on-air/mike-hosking-breakfast/audio/lisa-foster-campaign-launched-to-raise-awareness-for-people-living-with-rare-health-disorders/

Radio New Zealand National Programme – Jesse Mulligan Show

https://www.rnz.co.nz/national/programmes/afternoons/audio/2018736231/fair-for-rare-campaign-launched-today

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more