New Zealand’s first meeting of rare disorder researchers took place at Otago University last month.

Fourteen researchers from around New Zealand met in Dunedin at a meeting hosted by NZORD on 21 November. The aim was to bring together researchers in a relaxed and collegial atmosphere to build connections and collaborations.

Each participant presented their current research to the meeting, with time for discussion with their colleagues. The group also discussed funding opportunities for rare disease research within New Zealand and the possibility of setting up a an online hub for accessing and browsing shared data.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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