"I would make no changes to Lizzie’s lovely self, but I crave many, many changes to the world she lives in."

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HAVE YOUR SAY

 

 

 

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more