RDNZ advocacy and services

8 Jan 2019

RDNZ was invited to present at the Tuberous Sclerosis Conference in Wellington in October. Relationship Manager Lisa Foster spoke about the advocacy work RDNZ (formerly NZORD) does on behalf of all rare disease groups in New Zealand, as well as explained the services we offer to patients and health clinicians. A video of her presentation has been added to Youtube.

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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