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Rare Disorders NZ also supports a petition by Access Matters Aotearoa who are calling for the Government to broaden the scope of the Accessibility for New Zealanders Bill to include:
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Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
