RDNZ provided feedback under Pharmac's consultation process on the proposal to fund Trikafta for people with cystic fibrosis (CF) aged 6 years and over from 1 April 2023.
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Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
