Submission to Pae Ora Health of Disabled People Strategy

20 Mar 2023

Rare Disorders NZ has made a submission to the Pae Ora Health of Disabled People Strategy.

For most rare disorder patients, they experience forms of disability as a result of their condition. Unfortunately, the existing disability support system has proven unable to consistently meet the needs of the rare disorder community in New Zealand.

Rare Disorders NZ recommends that:

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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