Lewanna has a background in the health sector and more recently in the social sector. She is passionate about health equity and reducing the barriers faced by people trying to access social and health support. Lewanna is returning to the working world after four years at home with her two young daughters. When not working, Lewanna is busy enjoying the outdoors with her family and dog.

Lewanna Pentecost

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more