Susan joins RDNZ with a strong background in finance and office management and a passion for the non-profit sector. She has volunteered with various organisations including the Samaritans, Mary Potter Hospice, Houghton Valley Playcentre, as well as on the parent associations of several schools over the last 20 years. In what spare time she has, she can usually be found walking her Jack Russell terrier, Freddy, around the south coast of Wellington.

Susan Langston

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more