Amplifying the collective voice of New Zealanders with rare disorders

Wane Wharerau’s Māori governance and leadership experience spans operations, strategy, advocacy and Te Tiriti o Waitangi compliance.

He served in the NZ Police for over forty years in operational roles, including as an iwi liaison officer in Waitematā.

He also serves on not-for-profit boards, including as Director Māori for the Paediatric Society of New Zealand | Te Kāhui Mātai Arotamariki o Aotearoa, working with paediatricians on submissions to improve health legislation.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.