Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Rare Disorders NZ has made a submission to the Pae Ora Legislative Committee on the Pae Ora (Healthy Futures) Bill.
ASK: Establish an innovative acceleration fund for PHARMAC to reduce pressure on the NZ health system.
To mark International Children’s Day, messages from children from the rare disorder community throughout New Zealand will be handed to the Prime Minister to tell her what it means to live with a rare disorder.
A survey to collect much-needed data on what it means to live with a rare disorder in New Zealand is now live, and aiming to reach as many respondents as possible.