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Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
Latest news
Rare Disorders NZ: October Update
In this issue. International Children's Day Colouring Competition, Health Select Committee Hearing, Wellington Rare Disorder Catchup, The Medicine Gap, COVID Vaccine Update
Submission to the “Consultation on content for the 2023 10-year New Zealand Disability Survey”
Rare Disorders NZ has made a submission to the “Consultation on content for the 2023 10-year New Zealand Disability Survey” on behalf of the rare disorder community as we do not feel those with a rare disorder have been included in the survey questions
Ministry of Health recommendation not to proceed with a rare disorder national framework
The Ministry of Health does not recommend the development of a national framework for rare disorders at this stage.
Please stop calling medicine funding a Trolley Problem: NZ Herald by James McGoram Chair Rare Disorders NZ
Pease stop calling medicine funding a Trolley Problem