Raising the rare voice
We are the respected voice for rare disorders in New Zealand.
We advocate for access to world class and world leading health, disability, education and other services for the 300,000 New Zealanders living with a rare disorder.
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Flynn's story
Our son Flynn was around two years old when we realised he had sensory and behaviour issues. He was diagnosed at about four with autism and then at six with ADHD. Flynn had food issues, his hunger was insatiable and he would eat non-edible items. He could be violent towards others without realising his strength as he was a big boy. He also had febrile convulsions from six weeks old and later had…
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
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