Raising the rare voice
We are the respected voice for rare disorders in New Zealand.
We advocate for access to world class and world leading health, disability, education and other services for the 300,000 New Zealanders living with a rare disorder.
Rare News
Rare Stories
Jayne's story
In 2011, I was diagnosed with cervical and hand dystonia, but really have had problems since I was a child with fatigue, sore neck and mobility. It was a relief to be told I had something, as over the years there have been a variety of medical investigations; GP, psychological, gynaecological, physiotherapy, orthopaedic to mention a few. It is also a relief that there is a support g…
Meet some of the 300,000 people living with a rare disorder in New Zealand. If you would like to share your personal story tell us here.
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