Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder
In this issue. International Children's Day Colouring Competition, Health Select Committee Hearing, Wellington Rare Disorder Catchup, The Medicine Gap, COVID Vaccine Update
Rare Disorders NZ has made a submission to the “Consultation on content for the 2023 10-year New Zealand Disability Survey” on behalf of the rare disorder community as we do not feel those with a rare disorder have been included in the survey questions
The Ministry of Health does not recommend the development of a national framework for rare disorders at this stage.