Clinical Advisory Panel

Rare Disorders NZ's Clinical Advisory Panel has an impressive array of clinical expertise that helps to inform our work. The members of the clinical advisory panel are:

Clinical Genetics: Stephen Robertson (co-chair)

Rheumatology: Rebecca Grainger

Respiratory:

Haematology: Ruth Spearing

General Practice: John Martley

Audiology: Lisa Seerup

Nursing: Sharron Meadows

Metabolic: Emma Glamuzina

Immunology:

International/Clinical Genetics: Gareth Baynam

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Clinical Advisory Panel

Rare Disorders NZ's Clinical Advisory Panel

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Rare News

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Our Collective